Our Stories
We are gathering stories about how the Abbott hold is affecting our community to share with the media, the FDA, and other stakeholders. Your voices are essential to helping decision makers understand the impact of this situation on the daily lives, and health, of thousands. Your stories will be shared with only your first name, last initial, and state of residence, e.g. Sarah C., New Jersey.
71 people wrote in, from 27 states.
All 71 accounts
Tiffany C. | New Mexico | Patient Age: 10 | Disorder: GI issues NPO g-tube fed due to aspiration
Claire C. | Illinois | Patient Age: 33 | Disorder: PKU
David V. | Virginia | Patient Age: 63 | Disorder: PKU
Brittany H. | Connecticut | Patient Age: 35 | Disorder: PKU
Jennifer P. | Maryland | Patient Age: 48 | Disorder: Phenylketonuria (PKU)
Aimee F. | New York | Patient Age: 9 | Disorder: PKU
Ariadne E. | Illinois | Patient Age: 25 | Disorder: PKU
Delana L. | Florida | Patient Age: 12 | Disorder: EOE
Karin C. | California | Patient Age: 14 | Disorder: Phenylketonuria
Kylee G. | Michigan | Patient Age: 34 | Disorder: PKU
Lauren S. | Ohio | Patient Age: 13 | Disorder: PKU
Maridith B. | Florida | Patient Age: 21 | Disorder: PKU
Megan B. | Texas | Health Care Provider
Melissa S. | Maryland | Patient Age: 5 | Disorder: PKU
Patty V. | Missouri | Patient Age: 20 | Disorder: PKU
Stephanie F. | California | Patient Age: 3 | Disorder: PKU
Taylor P. | California | Patient Age: 2 | Disorder: Phenylketonuria (PKU)
Tiara B. | California | Patient Age: 17 | Disorder: PKU
Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
Audra H. | New York | Patient Age: 10 months | Disorder: PKU
Jessica E. | Michigan | Patient Age: 7 | Disorder: PKU
Julie P. | Arizona | Patient Age: 13 | Disorder: PKU
Mary E. | Illinois | Patient Age: 10 & 4 | Disorder: PKU
Thora J. | New Jersey | Patient Age: 11 | Disorder: PKU
Shannon H. | Louisiana | Patient Age: 12 | Disorder: Tyrosinemia Type 1
Jordann C. | California | Patient Age: 9 | Disorder: MSUD
AMY B. | Louisiana | Patient Age: 16 | Disorder: PKU
Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
Amy K. | Illinois | Patient Ages: 16, 12, 11 | Disorder: PKU
Amy M. | Alabama | Patient Age: 18 | Disorder: PKU
Anna D. | Kansas | Patient Ages: 4 and 6 | Disorder: Propionic Acidemia
Anne F. | Pennsylvania | Patient Age: 47 | Disorder: MSUD
Beth B. | Illinois | Patient Age: 20 | Disorder: PKU
Brandi W. | Texas | Patient Age: almost 15 | Disorder: PKU
BRITTANY M. | Texas | Patient Age: 8 | Disorder: Phenylketonuria
Charity K. | Oklahoma | Patient Age: 16 | Disorder: PKU
Claire O. | Utah | Patient Age: 15 | Disorder: PKU
Donna L. | New York | Patient Age: 21 | Disorder: PKU
Ed J. | New York | Patient Age: 3 years old | Disorder: Homocysturnia
Heidi M. | Utah | Patient Age: 14 | Disorder: PKU
Isabella O. | California | Patient Age: 7 | Disorder: Arginosuccinic Aciduria
Janelle M. | Massachusetts | Patient Age: 31 | Disorder: Phenylketonuria
Jany B. | Florida | Patient Age: 6 | Disorder: MSUD
Jasmine Y. | Washington | Patient Age: 5 | Disorder: Hypermethioninemia
Jason M. | Texas | Patient Age: 8 | Disorder: Phenylketonuria
Jennifer C. | Oregon | Patient Age: 46 | Disorder: PKU
Jenny P. | Ohio | Patient Age: 15 | Disorder: PKU
Jessica B. | Wyoming | Patient Age: 5 | Disorder: PKU
Jessica C. | California | Patient Ages: 11, and 9 | Disorder: PKU
Jessica K. | North Carolina | Patient Age: 6 | Disorder: PKU
Jessica R. | Tennessee | Patient Age: 3 | Disorder: SCOT deficiency
Jessica T. | Maine | Patient Age: 24 | Disorder: PKU
Jillian B. | New York | Patient Age: 5 | Disorder: Tyrosinemia Type 1
Julie T. | Alabama | Patient Age: 10 | Disorder: PKU
Kala M. | Wyoming | Patient Age: 2 year old | Disorder: PKU
Karen D. | New York | Patient Age: 27 | Disorder: MSUD
Karen M. | Georgia | Patient Ages: 21 and 23 | Disorder: PKU & Autism
Karie M. | Florida | Patient Age: 10 & 13 | Disorder: Phenylketonuria (PKU)
Katie M. | Texas | Patient Age: 33 | Disorder: Tyrosinemia type 3
Kelly M. | New York | Patient Age: 26 | Disorder: Maple Syrup Urine Disease
Kristi S. | Arizona | Patient Ages: 39, 18, 13, 9, 8 | Disorder: PKU
Les C. | Colorado | Patient Age: 43 | Disorder: PKU
Lisa F. | Maryland | Patient Age: 5 | Disorder: PKU
Lisa T. | Tennessee | Patient Age: 8 yrs old | Disorder: MSUD
Mary M. | Pennsylvania | Patient Age: 43 | Disorder: MSUD
Morgan M. | New York | Patient Ages: 11 and 12 | Disorder: PKU
Rachel F. | South Carolina | Patient Age: 6 | Disorder: PKU
Rebecca J. | North Carolina | Patient Age: 3 | Disorder: PKU
Sana A. | Texas | Patient Age: 3 | Disorder: Tyrosinimia type 1
Taryn F. | Illinois | Patient Age: 4 years old | Disorder: PKU
Tracie R. | Florida | Patient Ages: 17, 14 & 8 | Disorder: PKU