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Claire O. | Utah | Patient Age: 15 | Disorder: PKU

I am a teenager and I have taken Phenex every day of my entire life. I have difficulty drinking any other formula because they all make me gag. Having to switch to another formula makes me cry. It is literally the hardest thing about having PKU. And now, I just found out that the replacement formula (which I don’t like at all, but I can mostly tolerate) is not available either because it is on backorder. This feels like an impossible situation and it is very stressful!