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Jenny P. | Ohio | Patient Age: 15 | Disorder: PKU

When we heard that we weren’t going to be able to get our daughter’s Phenex-2 because of the shutdown, we immediately panicked. She has been on this formula all her life and has never found a formula that she could tolerate for an extended amount of time. Because of the harsh reality that she may not be able to get this formula any time soon, she was a trooper and we’ve hopefully found a replacement for at least a portion of her daily requirement. People with PKU and other metabolic disorders already deal with so many limitations in their diets, they need to have the security that they are going to be able to get their formula that their health depends on. Please do what is necessary so that those impacted don’t go hungry.