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Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD

I think I have told our story already, but it can’t be told enough. Our son is 20, and has been on Ketonex-2 for as long as I can remember. This recall is unbelievable as far as the stress level it has caused us. He has been taking 300g of Ketonex for years…. that is about 6 cans a week. We NEED this formula for him to survive. Literally survive.  He is working full time, and I haven’t even discussed this issue with him because even something as stressful as this could put him into crisis and into the hospital. Obviously we need to avoid that! This situation needs expedited immediately. Our community can’t go on like this!