Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
I think I have told our story already, but it can’t be told enough. Our son is 20, and has been on Ketonex-2 for as… Read More »Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
Maple Syrup Urine Disease
Jordann C. | California | Patient Age: 9 | Disorder: MSUD
My 9-year-old son, Carter, loves his Ketonex-2. He is a very active kid and routinely asks for extra batches of his metabolic formula. Since we… Read More »Jordann C. | California | Patient Age: 9 | Disorder: MSUD
Kelly M. | New York | Patient Age: 26 | Disorder: Maple Syrup Urine Disease
My son is 26 years old and has a lot of struggles due to his metabolic disease, with several hospitalizations over the years. It’s hard… Read More »Kelly M. | New York | Patient Age: 26 | Disorder: Maple Syrup Urine Disease
Mary M. | Pennsylvania | Patient Age: 43 | Disorder: MSUD
When this all started in March 2022, we had plenty of Complex for the month of April, or so we thought. We are down to… Read More »Mary M. | Pennsylvania | Patient Age: 43 | Disorder: MSUD
Jany B. | Florida | Patient Age: 6 | Disorder: MSUD
After my son’s diagnosis, not having his formula available has been the scariest feeling ever. My baby cannot go a day without it or else… Read More »Jany B. | Florida | Patient Age: 6 | Disorder: MSUD
Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
Our son is 20, just turned last week. He was diagnosed with MSUD(Maple Syrup Urine Disease) when he was 12 days old. He is Classic… Read More »Amy J. | Ohio | Patient Age: 20 | Disorder: MSUD
Karen D. | New York | Patient Age: 27 | Disorder: MSUD
My daughter has been consuming 1 quart of Ketonex 2 every day since early childhood. She is accustomed to the taste. She has tried other… Read More »Karen D. | New York | Patient Age: 27 | Disorder: MSUD
Anne F. | Pennsylvania | Patient Age: 47 | Disorder: MSUD
Our son is 47 years old with disabilities due to a late diagnosis. He has never used anything but MSUD Complex. He has severe anxiety… Read More »Anne F. | Pennsylvania | Patient Age: 47 | Disorder: MSUD
Lisa T. | Tennessee | Patient Age: 8 yrs old | Disorder: MSUD
Even though I do not use Abbott products the shortage has caused all of the other brands to become unavailable too. We had a fairly… Read More »Lisa T. | Tennessee | Patient Age: 8 yrs old | Disorder: MSUD