I have started to ration my formula which means I am not getting the protein equivalent I need, so my body begins to break down my own fat and muscle. This exposes me to the very amino acid I am trying to avoid – causing headaches, brain fog, anxiety, short temper, and tremors, among other symptoms. Not only does this effect my personal life and the lives of those I care about, but it effects my work life as well. I am a medical receptionist and I fear the memory issues and brain fog my level spikes cause could inhibit my ability to do my job well or, heaven forbid, cause me to make a mistake that could effect patient care and confidentiality. The longer I have to ration, the less protein equivalents I will get, and the worse my symptoms will become. If I don’t get my formula at all, I will probably have to take a leave of absence from work as the mood issues on top of the memory problems would be too much for me to tolerate and still do my job.
Originally published at https://metabolicformula.org/claire-c-illinois-patient-age-33-disorder-pku/