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Isabella O. | California | Patient Age: 7 | Disorder: Arginosuccinic Aciduria

My daughter’s metabolic disorder is very rare and she is completely Gtube which means she doesn’t eat anything my mouth. She also struggles with new formula. It’s been very stressful not been able to find her formula and with what we have it’s a matter of days before we ran out and we can’t even think how bad it would after her. She can even possibly be hospitalized if she doesn’t have her formula to meet her daily nutrition. Please you need to consider this very fragile babies/kids. If you were a parents with a kids having a rare metabolic disorder you would rush all this process.