Illinois

I have started to ration my formula which means I am not getting the protein equivalent I need, so my body begins to break down… Read More »Claire C. | Illinois | Patient Age: 33 | Disorder: PKU

While I don’t use Abbott products, the shut down has caused the people that do to switch formulas. Now my usual formula is backordered and… Read More »Ariadne E. | Illinois | Patient Age: 25 | Disorder: PKU

I have 2 boys with PKU 10 & 4. It has been a nightmare. Our dietitian and formula rep have been doing everything they possibly… Read More »Mary E. | Illinois | Patient Age: 10 & 4 | Disorder: PKU

My daughter has been drinking Phenex 2 for all 20 years of her life. The extended Abbott hold has been extremely stressful for our whole… Read More »Beth B. | Illinois | Patient Age: 20 | Disorder: PKU

We do not use Abbot products, but we are now being told his Nutricia Phenylade GMP Ready is on back order with no date for… Read More »Taryn F. | Illinois | Patient Age: 4 years old | Disorder: PKU

When Abbott changed Phenex 2 a year and a half ago, we sampled almost every other formula out there. My children could not drink any… Read More »Amy K. | Illinois | Patient Ages: 16, 12, 11 | Disorder: PKU