Aimee F. | New York | Patient Age: 9 | Disorder: PKU
We are one of the lucky ones… We were cutting it too close every month with the amount of my daughter’s formula that was originally… Read More »Aimee F. | New York | Patient Age: 9 | Disorder: PKU
New York
Audra H. | New York | Patient Age: 10 months | Disorder: PKU
My son was forced to switch from Phenex1 to Periflex Early Years due to the contamination issue at the Abbott facilities. It is imperative that… Read More »Audra H. | New York | Patient Age: 10 months | Disorder: PKU
Jillian B. | New York | Patient Age: 5 | Disorder: Tyrosinemia Type 1
Our daughter is 5 and drinks Tyrex for her nutrition. This is an essential part of her diet and can’t simply be replaced by a… Read More »Jillian B. | New York | Patient Age: 5 | Disorder: Tyrosinemia Type 1
Morgan M. | New York | Patient Ages: 11 and 12 | Disorder: PKU
The past month of formula shortage has been incredibly stressful for my family. Like many people with PKU, finding a formula that was palatable and… Read More »Morgan M. | New York | Patient Ages: 11 and 12 | Disorder: PKU
Donna L. | New York | Patient Age: 21 | Disorder: PKU
My son who has PKU is about to face a more difficult situation with the loss of the one formula he tolerates very well. To… Read More »Donna L. | New York | Patient Age: 21 | Disorder: PKU
Ed J. | New York | Patient Age: 3 years old | Disorder: Homocysturnia
We can’t transition to another formula. My daughter has sensory processing disorder affects her eating. She will only drink her formula out of a bottle… Read More »Ed J. | New York | Patient Age: 3 years old | Disorder: Homocysturnia
Kelly M. | New York | Patient Age: 26 | Disorder: Maple Syrup Urine Disease
My son is 26 years old and has a lot of struggles due to his metabolic disease, with several hospitalizations over the years. It’s hard… Read More »Kelly M. | New York | Patient Age: 26 | Disorder: Maple Syrup Urine Disease
Karen D. | New York | Patient Age: 27 | Disorder: MSUD
My daughter has been consuming 1 quart of Ketonex 2 every day since early childhood. She is accustomed to the taste. She has tried other… Read More »Karen D. | New York | Patient Age: 27 | Disorder: MSUD